The online resource offers patients with pulmonary fibrosis and interstitial lung disease guidance and support in the early months after diagnosis.
RT’s Three Key Takeaways:
- Patient-Focused Education: The Pulmonary Fibrosis Foundation’s new online resource, PF Basics: Info for Newly Diagnosed Patients, provides tailored guidance to help newly diagnosed patients understand their condition and make informed decisions.
- Comprehensive Support Modules: The program includes six modules covering topics like treatment options, daily living, support resources, and the latest research, allowing patients to learn at their own pace.
- Collaborative Development: The resource was created with input from both medical experts and patients, ensuring it addresses the most pressing concerns of those newly diagnosed with pulmonary fibrosis or interstitial lung disease.
The Pulmonary Fibrosis Foundation (PFF), a pulmonary fibrosis research, education, and advocacy organization, has unveiled an educational resource aimed at guiding and supporting individuals newly diagnosed with pulmonary fibrosis (PF) and interstitial lung disease (ILD).
PF Basics: Info for Newly Diagnosed Patients is a curated online program that answers patients’ most pressing questions about PF and ILD in the early months post-diagnosis. Combining medical insights with patient insights, PF Basics aims to support confident, informed decision-making during this phase.
“We heard from patients and caregivers that a guided approach could make a significant impact for those newly diagnosed with PF or ILD,” says Scott Staszak, president and CEO of the PFF, in a release. “Our new PF Basics program connects patients and their families with the essential information they need at the start of their journey and reminds them that they are not alone.”
Six Online Modules
The PFF encourages newly diagnosed patients to explore the six modules of PF Basics at their own pace, based on their individual interests. The first covers fundamental information and answers to common questions such as “What is the life expectancy for people with PF?” and “Is PF a genetic disease?”
Subsequent modules address treatment options, medical care, support resources, living with PF, and the latest in research and clinical trials. Each module features patient stories and provides links to comprehensive resources on the PFF website.
PF Basics: Info for Newly Diagnosed Patients was developed with the expertise of the PFF medical team and input from the patient community. The program is designed to help patients understand and prioritize key steps to take during the crucial months after diagnosis.
More than 250,000 Americans are living with pulmonary fibrosis and ILD. These disorders are characterized by varied amounts of inflammation, scarring, or both, that damage the ability of the lung to absorb oxygen. The prevalence of PF is on the rise with more than 50,000 new cases diagnosed annually, according to PFF.
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